“GIVE BEAUTY BACK TO THE CHILDREN” - PEDIATRIC MAXILLOFACIAL SURGERY FUND
Thousands of Russian children are burdened by unsightly facial deformities as a result of congenital defects, tumors, cleft lips, cleft palates, and other traumas. Only 2-3 hospitals in all of Russia have specialized surgeons to undertake cases that often require a series of surgeries and highly advanced medical technology. Consequently, treatment is often a luxury, few families have access to even when it is a dire necessity for a child’s physical and psychological well-being.
The Russian Children’s Welfare Society has been involved in several medical assistance projects helping to properly equip hospitals, promote training of Russian doctors in the latest medical advancements, and treat children in need.
Over eight years ago, RCWS launched “Give Beauty Back to the Children,” in partnership with Professor Vitaly Roginsky, Head of the Moscow Center for Maxillofacial Surgery (MCMS) and Lev Ambinder, Head of the Russian Aid Foundation (Rusfond). MCMS is one of the most innovative facilities in Russia providing treatment and rehabilitation for children with facial deformities.
The “Give Beauty Back to the Children” program has forever altered the lives of over 900 children suffering from facial deformities. The average cost per surgery is in the range of $2,500-$5,000. Thanks to our donors’ support and the help of advanced medical micro technology, Professor Roginsky and his staff have witnessed the transformation of as a result of these surgeries.
MEDICAL TRAINING PROGRAM
This past March, RusFond and RusFond USA worked with the RCWS to provide specialized training in the treatment of Epidermolysis Bullosa for eight Russian medical professionals at the Birmingham Children’s Hospital in England, one of only two centers to run a specialist pediatric service for this disease. EB is a very rare genetic connective tissue disorder that affects 1 child out of every 50,000. Children with EB are known as “butterfly” children because their skin is as fragile as the wings of a butterfly and tears at the slightest scratch. When provided with proper medical treatment, children with EB can live from 50-70 years versus only 12-15 years without treatment. Regular pediatricians cannot provide the routine care and follow-up that children with EB require so this exchange will arm the Russian doctors with the required knowledge and give them the opportunity to live happy, productive lives free of restrictions.
Besides seriously affecting internal organs and bodily systems, EB has a long list of secondary complications that requires interventions from medical specialists in addition to daily care. The visiting team was shown videos of children with EB undergoing procedures in Birmingham, including surgery and the exquisite care and expertise required to insert feeding tubes without rupturing the children’s skin. They also learned how to properly dress EB patients’ wounds, spoke to youngsters afflicted with the condition, and visited the burn, dental and eye departments. Armed with the specialized knowledge from their training in England, these 8 medical professionals want to set up a specialist clinic to treat EB at St Petersburg Children’s Hospital No 1.
CHILDREN’S HOSPITAL OF THE CITY OF MOSCOW NO.12
The Children’s Hospital of Moscow provides medical assistance to over 41,000 children (29 schools, 56 kindergartens, 2 orphanages and 3 colleges) who live in their district. The hospital offers both prophylactic care and targeted treatments. The Hospital services almost 75% of children living in southern Moscow. The RCWS helped the Hospital acquire equipment for the treatment and preventative care of children with congenital cardiac defects. This equipment elevated the quality of diagnosis by allowing for more accurate cardiac, transcranial, abdominal, and vascular ultrasounds. Since the average lifespan of a transducer is 10 years, the Hospital will be able to examine around 85,000 children and greatly improve the lives of those found to have cardiac pathologies.